Short answer · Medically reviewed summary · Last updated: 2026-05-08
A diagnosis of osteonecrosis, or avascular necrosis, means that blood flow to your bone is temporarily or permanently restricted, leading to bone tissue death. While this diagnosis is overwhelming, early intervention—such as offloading weight or surgical core decompression—can significantly improve outcomes and preserve joint function. What is the most important first step after an osteonecrosis diagnosis? The most critical priority after an osteonecrosis diagnosis is to prevent further bone collapse by minimizing mechanical stress on the affected joint.
12 people with Osteonecrosis have shared their first-person experience on this question at DiseaseMaps.
Which advice would you give to someone who has just been diagnosed with Osteonecrosis?
Advice for the newly diagnosed with Osteonecrosis, written by people who have lived it. What they wish they had known on day one.
A diagnosis of osteonecrosis, or avascular necrosis, means that blood flow to your bone is temporarily or permanently restricted, leading to bone tissue death. While this diagnosis is overwhelming, early intervention—such as offloading weight or surgical core decompression—can significantly improve outcomes and preserve joint function.
What is the most important first step after an osteonecrosis diagnosis?
The most critical priority after an osteonecrosis diagnosis is to prevent further bone collapse by minimizing mechanical stress on the affected joint. You should immediately consult an orthopedic surgeon who specializes in joint preservation rather than just joint replacement. Protecting the joint early is the best way to potentially avoid or delay major surgery.
How should I build my care team for osteonecrosis?
Managing osteonecrosis requires a multidisciplinary approach. Your core team should include:
- An orthopedic surgeon (specifically one experienced in bone preservation techniques).
- A physical therapist to help maintain range of motion without putting excessive weight on the affected area.
- A rheumatologist or hematologist to investigate underlying systemic causes, such as corticosteroid use, alcohol consumption, or clotting disorders.
- A clinical psychologist to support your emotional health during what is often a long-term recovery process.
How can I connect with others living with osteonecrosis?
You are not alone; 410 people with osteonecrosis have already joined the DiseaseMaps.org community to share their experiences and coping strategies. Engaging with these peers can provide practical tips for daily living, such as how to use assistive devices or manage pain, which can be just as valuable as medical advice.
How do I stay informed about osteonecrosis research?
To stay updated on the latest treatments for osteonecrosis, regularly monitor clinical trial registries and research databases. Understanding the stage of your osteonecrosis (typically staged I through IV) will help you narrow down which emerging therapies, such as regenerative medicine or bone grafting, might be relevant to your specific case.
Next steps
- Schedule a follow-up with an orthopedic specialist to discuss your specific staging.
- Join the osteonecrosis community at DiseaseMaps.org to connect with others.
- Track your symptoms and medications in a journal to prepare for clinical appointments.
- Research clinical trials on ClinicalTrials.gov to see if you are a candidate for innovative therapies.
Medical disclaimer: This information is for educational purposes only and does not replace professional medical advice, diagnosis, or treatment from your healthcare provider.
References
- NIH Genetic and Rare Diseases Information Center (GARD): Osteonecrosis
- Orphanet: Avascular necrosis of bone
- American Academy of Orthopaedic Surgeons (AAOS): Osteonecrosis of the Hip
- Journal of the American Academy of Orthopaedic Surgeons: Current Concepts in Osteonecrosis
Posted Jun 16, 2017 by Austin 4830
Posted Jun 30, 2017 by Dave 2270
Posted Sep 27, 2017 by Alan 900
Posted Nov 2, 2017 by Pamela 1600
Posted Jun 11, 2018 by Rob 1500
Posted Jun 11, 2018 by Megan 2500
Posted Jul 16, 2018 by Jenny from the block 900
Posted Nov 13, 2018 by Scott 3050
Posted Aug 27, 2019 by Cheryl 2800
Dr Glueck is a retired endocrinologist who has done many medical studies on AVN. Ask him to do a free assessment.
He will get to the bottom of the why and your triggers.
Then you can try to preserve your bone through CD
Posted Feb 28, 2020 by Lisa j 1700
It's important to remember that there are successful treatments for osteonecrosis that take away the pain and return your physical activity.
Posted Mar 15, 2020 by Caitlin 3050
Posted May 18, 2017 by Javier 2150
