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How do I know if I have Osteopetrosis?

What signs or symptoms may make you suspect you may have Osteopetrosis. People who have experience in Osteopetrosis offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Osteopetrosis?
2 answers
If fractures are common even from light activities. I drop a bottle of soap on my foot and the next day i step up to walk to my wheelchair and my pinky toe cracked.

I would see an orthopedic and suggest an X Ray.

Posted Jul 26, 2017 by Chuck 2001
It is usually found by accident during trays. The spine looks like a spine within a spine. I was seen by an endocrinologist who specialized in treating osteopetrosis. Since his death I have not found another doctor

Posted Sep 28, 2017 by Mary 2550

Do I have Osteopetrosis?

Osteopetrosis life expectancy

What is the life expectancy of someone with Osteopetrosis?

6 answers
Celebrities with Osteopetrosis

Celebrities with Osteopetrosis

1 answer
Is Osteopetrosis hereditary?

Is Osteopetrosis hereditary?

6 answers
Is Osteopetrosis contagious?

Is Osteopetrosis contagious?

6 answers
ICD9 and ICD10 codes of Osteopetrosis

ICD10 code of Osteopetrosis and ICD9 code

5 answers
Natural treatment of Osteopetrosis

Is there any natural treatment for Osteopetrosis?

3 answers
Living with Osteopetrosis

Living with Osteopetrosis. How to live with Osteopetrosis?

8 answers
Osteopetrosis diet

Osteopetrosis diet. Is there a diet which improves the quality of life of p...

6 answers

World map of Osteopetrosis

Find people with Osteopetrosis through the map. Connect with them and share experiences. Join the Osteopetrosis community.

Stories of Osteopetrosis

OSTEOPETROSIS STORIES
Osteopetrosis stories
I found out I had very dense bones by accident after taking an x-ray for a possible broken wrist. Aside from breaking both knee caps (a year apart) I didn't think much about the disease until I was in my mid 40's. At that time I began having horrific...
Osteopetrosis stories
hello, I'm a 16 year old young lady that has had osteopetrosis since I was 6 months old! I had a bone marrow transplant back In 2010 when I was 10 years old, and im getting ready for another one in august🌸 I've broken over 70+ bones! Please pr...

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Osteopetrosis forum

OSTEOPETROSIS FORUM
Osteopetrosis forum
I'm 66 yrs old with ADO 11 and will soon be looking for orthopedic surgeons who will be willing to explore possibility of total hip replacement due to degenerative osteoarthritis w osteopetrosis.    Know of any specialists on the East Coast of the ...

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