PV hit like a bomb!
Jun 23, 2026
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Not unlike other patients, I fist had what I thought was an insect bite. Then it grew and grew on upper back till I was covered in 3" blisters. Went to Bevelry Hills dermatologist. Misdiagnosed for 4 months. Blood tests said PV; biopsy said negative. It was PV.
Given 100mg of Prednisone to start, along with other meds. Affected areas: Upper back, scalp, gums, larynx.
Never given other medications. Took ten years. In remission since September 2012.
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