DiseaseMaps Quality of Life Observatory
Quality of life with Migrena
An anonymous, aggregate view of self-reported SF-36 results. Higher dimension scores indicate better reported health.
Based on at least 400 eligible observations (counts are rounded down in bands of 10). Editorial release: 2026-Q2.
What the community reports
Compared with the control sample (at least 530 observations), participants associated with Migrena reported an approximately 45-point lower mean for Role limitations due to physical health.
Compared with the control sample (at least 530 observations), participants associated with Migrena reported an approximately 35-point lower mean for Pain.
Only coarsely rounded means are public. Exact cohort sizes, observation dates, medians and percentiles are withheld to reduce reconstruction risk.
Nine reported measures
| Measure | N lower bound | Rounded mean | Rounded control mean | Rounded all-diseases mean |
|---|---|---|---|---|
| Physical functioning | ≥400 | 45 | 75 | 50 |
| Role limitations due to physical health | ≥400 | 15 | 60 | 25 |
| Role limitations due to emotional problems | ≥400 | 35 | 55 | 40 |
| Energy and fatigue | ≥400 | 20 | 45 | 30 |
| Emotional well-being | ≥400 | 55 | 60 | 55 |
| Social functioning | ≥400 | 35 | 60 | 45 |
| Pain | ≥400 | 30 | 65 | 45 |
| General health | ≥400 | 25 | 55 | 35 |
| Health change (supplementary) | ≥400 | 40 | 50 | 45 |
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Methodology
What is included
Active, complete observations from the three historical DiseaseMaps SF-36 tables are read through one canonical layer. Follow-up observations inherit a disease from an active baseline survey; if no baseline exists, they are included only when the participant has exactly one active patient marker. Ambiguous assignments are excluded.
Deduplication and statistics
Exact duplicates for the same authenticated participant, second and score vector count once. Anonymous records cannot unlock or enter a public cohort. The earliest eligible observation per participant is used.
Privacy threshold
Disease-level results are published only when at least 20 eligible observations remain. N is a lower bound in bands of 10; means are rounded to five points (legacy total to 100), and dates, medians and percentiles are withheld.
Only completed calendar quarters are eligible. A durable public snapshot changes only when the cohort crosses into another public N band.
Limitations
This is a voluntary, self-selected community sample. It may not represent everyone with the condition, does not adjust for age, geography, disease severity or coexisting conditions, and cannot establish causation.