PIP-UK - Poland Syndrome Charity
PIP-UK - Poland Syndrome Charity

Details

  • Name: PIP-UK - Poland Syndrome Charity
  • Phone: +447877 664 170
  • Website: http://pip-uk.org
  • Address: Manchester, United Kingdom
  • Contact

Location

Description

PIP-UK is a Poland Syndrome Charity run by a group of volunteers set up to help individuals and families find out more about Poland Sydnrome and what it means to live with PS. 

There are many children born in the UK and across the world with Poland Syndrome. Very little is known about it and it’s hard to find the right people in the know in the medical community. At PIP-UK we want to change this situation and make sure people get access to the right information for them, at the right time. 

To date we have helped a number of individuals and families obtain a poland syndrome diagnosis, provided comfort and answers to lots of questions and connected them to the rest of the Poland Syndrome community.