Story about Poland Syndrome .

My Baby girl born with Poland's Syndrome

Apr 29, 2019

By: Vanessa

Year Condition Began: 2018


My beautiful daughter Pearl, born November 2018 was born with (mild) Poland Syndrome. She is missing her Right Pectoral muscle & her 3rd & 4th rib. She may need a breast reconstruction when she is older, if that is what she decides she would like. I had never heard of the disease & neither had the hospital! So when she was 7 days old I had to take her to a specialist in London who had heard of the condition but never actually seen it in an infant. As the milder form Poland's Syndrome isn't always obvious until they grow. So the doctors & nurses were all very excited, I believe the exact phrase used by one doctor was "its more interesting than alarming". Believe me after 3 (missed) miscarriages, it was very alarming! However she's an amazing, beautiful strong girl and a little warrior. Because despite the odds she was getting to this world with missing parts or not ❤
I do worry about how it will affect her confidence & self esteem growing up, particularly as it will affect her breast development. She's only a baby at the mo but if anyone has any insight or experience with their experiences with Poland's Syndrome wether u opted for surgery or not. I would greatly appreciate it. Thanku

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


A Poland Syndrome interview

View interview


Poland Syndrome prognosis

Poland Syndrome prognosis

Poland Syndrome life expectancy

What is the life expectancy of someone with Poland Syndrome?

ICD9 and ICD10 codes of Poland Syndrome

ICD10 code of Poland Syndrome and ICD9 code

Celebrities with Poland Syndrome

Celebrities with Poland Syndrome

Living with Poland Syndrome

Living with Poland Syndrome. How to live with Poland Syndrome?

Poland Syndrome and depression

Poland Syndrome and depression

Prevalence of Poland Syndrome

What is the prevalence of Poland Syndrome?

Natural treatment of Poland Syndrome

Is there any natural treatment for Poland Syndrome?