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Which advice would you give to someone who has just been diagnosed with Poland Syndrome?
See some advice from people with experience in Poland Syndrome to people who have just been diagnosed with Poland Syndrome
Join the facebook groups and learn as much as you can from others.
Posted Dec 3, 2021 by POLAND SYNDROMIGHTIES
Research join clubs of fellow.sufferers and educate your dr
Posted Mar 4, 2017 by Laurie 1011
Just get on with life. Either you have physical deformities that would usually be identified very early in life or you have very mild symptoms that are hardly noticeable.
Posted Sep 1, 2017 by Rodney 2000
As usually a child get psremts educated
Posted Sep 8, 2017 by Nanahanim 1700
The same as question #2.
Posted Sep 30, 2017 by Deana 2000
exercise, surgery when can.
Posted Jun 9, 2018 by Mary Fletcher 2500
Kids should be told early in life so they can own it and understand it. My mom didn’t tell me until I was 12 and by that time it seemed like it was something to be ashamed of. However in her opinion she didn’t want me to think I was any different from other kids
Posted Jul 14, 2018 by Michael 3561
I would have gotten therapy early. I would bring awareness to the school and students. Maybe even the entire neighborhood and city.
Posted Dec 3, 2019 by Steph 1503
Be patient with people. They don't understand. And enjoy the journey that you're on. Don't take it so personal.
Posted Feb 14, 2020 by Lori 2500
Find out as much information as you can .seek other people with the same diagnosis even though Poland syndrome is rare their are other people who have been diagnosed too .
Posted Nov 29, 2020 by Rainbow 1100
Visit a surgeon in severe cases
Posted Jan 30, 2022 by Onipede 2500
