1
Which are the symptoms of Pontocerebellar Hypoplasia?
Symptoms of Pontocerebellar Hypoplasia reported by real patients, from the most common to the most limiting, plus a medically reviewed summary with sources.
Muscular atrophy, spastic muscles, difficulty with eating/reflux.
Posted Aug 10, 2017 by Benjamin Busque 2620
If I could get rid of five symptoms that hinder quality of life they would be..
• Refractory Epilepsy
• The need of feeding tube placement due to difficulties with swallowing caused by lack of motor control and resulting in spillage (into the lungs) causing pneumonia
• I would like to kick nonverbal out with,
I'd give anything to answer her "why's" and "what's." It would be interesting to know her thoughts.
• Non ambulatory, oh to hear the putter-patter of feet running to you and wipe those fingerprints away that make you the sweetest crafts
Last but not least,
The main thing I would take away if I could..
• The expiration date they label on your child once they are diagnosed.
Not all, but some outlive the ten years PCH type II. Some don't get that.
• Refractory Epilepsy
• The need of feeding tube placement due to difficulties with swallowing caused by lack of motor control and resulting in spillage (into the lungs) causing pneumonia
• I would like to kick nonverbal out with,
I'd give anything to answer her "why's" and "what's." It would be interesting to know her thoughts.
• Non ambulatory, oh to hear the putter-patter of feet running to you and wipe those fingerprints away that make you the sweetest crafts
Last but not least,
The main thing I would take away if I could..
• The expiration date they label on your child once they are diagnosed.
Not all, but some outlive the ten years PCH type II. Some don't get that.
Posted Feb 27, 2020 by Alisa Dorsey 200
