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Porphyria diet. Is there a diet which improves the quality of life of people with Porphyria?

Are you aware of a diet that can improve the quality of life of people with Porphyria? Is there a diet that is suggested to avoid when having Porphyria? See if there is a diet that can improve the quality of life of people with Porphyria, recommended and to avoid food when having Porphyria

Porphyria diet
7 answers
A patient with porphyria should avoid changing caloric intake, and limiting carbs.

A high carb, low fat diet is what dietitians recommend.

Posted Feb 27, 2017 by Cassandra 1000
I have found that staying away from red meat improves my state of well-being, however, eating too many cards have a negative impact on weight

Posted Jan 12, 2018 by Mari Blignault 1500
Restricted alcohol, medicaments that are on porphyria - unsafe drug list. Daily sugar and carbohydrates intake is safer way to get away far from hospitals

Posted Jul 14, 2018 by Nadezda 750
High carbohydrates . Avoid keto or low carb diets.

Posted Mar 30, 2019 by Jocelyn 800
FOR MY EXPERIENCE, NO GLUTEN, NO DAIRY IS THE BEST DIET FOR ME. IT HAS HELPED A LOT!

Posted Mar 30, 2019 by Marie 2500
Eating regular, small meals is important, Consuming good carbohydrates will ensure the right nutrients are consumed to avoid exposure to other diseases such as diabetes etc. Many healthy foods contain carbohydrates as well as unhealthy foods. Choose foods that have good nutritional value, such as fruit, vegetables, and whole grains. Avoid foods that have low nutritional value, such as carbonated cooldrinks, biscuits or cake , sweets, and other foods that contain high amounts of added sugar.

Heme is a major component of hemoglobin, a protein in red blood cells. It transports oxygen from the lungs to organs throughout the body, and transports carbon dioxide back to the lungs so it can be exhaled. Porphyrias are metabolic disorders that occur when the body is unable to properly synthesize heme, though some heme is made, a significant amount remains in an incomplete state.

When the body cannot fully synthesize heme, porphyrins and porphyrin precursors, chemicals that are made during heme synthesis accumulate in the body and disrupt normal functioning.

When the body metabolizes carbohydrates, carbohydrates are broken down into glucose (sugar). Glucose suppresses an enzyme used in heme production. For people with acute porphyria, this helps reduce the amount of heme precursors in the blood.

Posted May 29, 2021 by Carollynn 5770
High carbs, lower fat. Wen at attack is beginning a lot of sugar items and high carbs. For some reason the high sugars will dilute the porphyrins in your body. Cabbage is a no-no in high proportions

Posted Jan 12, 2023 by Tracey 600

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