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Is it advisable to do exercise when affected by Porphyria? Which activities would you suggest and how intense should they be?

Exercise with Porphyria: which activities patients recommend or avoid, and what the evidence says.

Porphyria sports
8 answers
Exercise is important for everyone. If a porphyria patient is able, they should get as much exercise as possible. Walking, jogging, working out, etc are all good ways of getting exercise.

Posted Feb 27, 2017 by Cassandra 1000
No I am left floor bound a lot and havent even been able to care for my hair.

Posted Dec 12, 2017 by Verity 500
Yes, I jog inside on a treadmill, as walking and jogging outside make me ill

Posted Jan 12, 2018 by Mari Blignault 1500
Low intense of exercise is safe. All the way during exercise you should be careful, and poor dieting is extremely dangerous.

Posted Jul 14, 2018 by Nadezda 750
Yes especially because of high carb diet.

Posted Mar 30, 2019 by Jocelyn 800
AS I SAID, YOU CAN DO WHAT EVER YOU WANT IF YOU HAVE PAI, HOW EVER YOU HAVE TO BE VERY CAREFUL WITH YOUR CALORIES AND ELECTROLYTIC IN TAKE!

Posted Mar 30, 2019 by Marie 2500
Exercise is important, for a start the phycological benefits of exercise are numerous, moderate intensity levels carried out daily for an average of 20 minutes at least if your health permits should be encouraged. Research has found that those people partaking in some form of exercise have a lower risk of developing many long-term (chronic) conditions, such as heart disease, type 2 diabetes, stroke, and some cancers. Research shows that physical activity can also boost self-esteem, mood, sleep quality and energy, as well as reducing your risk of stress , depression , dementia and Alzheimer's disease. Our muscles need to be exercised or they atrophy.

Yoga is a wonderful form of exercise that encourages stretching, deep breathing techniques, helps relax the mind, improves concentration, balance and focus. There are many different types of yoga to suit everyone.
Walking is also a very good form of exercise, it gets you outdoors as well and lifts your mood.
Swimming is another great means of exercise, water is gentle on the body thus its a low impact form.
Gym sessions can also be good when done in moderation.

Posted May 29, 2021 by Carollynn 5770
Due to the fact that Porphyria can immobilize you and even cause paralysis it is encouraged that you see a physical therapist to help you keep moving. I will tell you, tho, during an attack you do not want to move or get out of bed because even cold air will cause your pain to increase (as does any movement). I have denied treatment from the physical therapists many times the first few days of a high pain attack.

Posted Jan 12, 2023 by Tracey 600

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