Which advice would you give to someone who has just been diagnosed with Prader-Willi Syndrome?
Advice for the newly diagnosed with Prader-Willi Syndrome, written by people who have lived it. What they wish they had known on day one.
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Yo no fui diagnosticada pero si mi hija, me hubiese gustado que me dieran mas información, ya que lo que esta en internet es informacion muy terrible. Un apoyo mejor para dar la noticia.