- Primary ciliary dyskinesia
- Interviews
Loredana's interview
How did all start?
It's genetic I have the Primary ciliary dyskinesia with situs viscerum inversus: Kartagener Syndrom
Do you already have a diagnosis? How long did it take you to get it?
I have a diagnosis. It taked 3 years and I was 3 years old
For what medical specialties have you been treated? What has been the most useful specialty for your?
pneumology, otorhinolaryngology, gastroenterology. Pneumology it's more useful
What has been the most useful thing for you so far?
antibiotic, saline solutions, vitamins C, B
What have been your biggest difficulties?
the continual fevers, the breathing difficulties, to feel few the odors, having to explain to people that it is not as terrible as it is from cough and are not infectious to others
How has your social and family environment reacted? Have your social or family relationships changed?
I don't remember. I was very young
What things have you stopped doing?
I can't have change of temperature, I can't practice agonistic sport, I can't do some types of work
What do you think about the future?
I'm an optimistic person
What would you like to do if you didn’t have your condition?
More things
Finally, what advice would you give to a person in a similar situation?
Never give up, do sports, go out of home, and live a life as normal as possible.Check the color of the sputum and mucus: light yellow ok, dark yellow attention, green infection, very dark green ugly infection. When the color is bad go to the doctor, it is necessary to use antibiotics
