2. Primary ciliary dyskinesia
3. Interviews

Loredana's interview

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How did all start?

It's genetic I have the Primary ciliary dyskinesia with situs viscerum inversus: Kartagener Syndrom

Do you already have a diagnosis? How long did it take you to get it?

I have a diagnosis. It taked 3 years and I was 3 years old

For what medical specialties have you been treated? What has been the most useful specialty for your?

pneumology, otorhinolaryngology, gastroenterology. Pneumology it's more useful

What has been the most useful thing for you so far?

antibiotic, saline solutions, vitamins C, B

What have been your biggest difficulties?

the continual fevers, the breathing difficulties, to feel few the odors, having to explain to people that it is not as terrible as it is from cough and are not infectious to others

How has your social and family environment reacted? Have your social or family relationships changed?

I don't remember. I was very young

What things have you stopped doing?

I can't have change of temperature, I can't practice agonistic sport, I can't do some types of work

What do you think about the future?

I'm an optimistic person

What would you like to do if you didn’t have your condition?

More things

Finally, what advice would you give to a person in a similar situation?

Never give up, do sports, go out of home, and live a life as normal as possible.Check the color of the sputum and mucus: light yellow ok, dark yellow attention, green infection, very dark green ugly infection. When the color is bad go to the doctor, it is necessary to use antibiotics

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