Story about Primary ciliary dyskinesia .

One in a million!

Dec 23, 2016


I am the mother of an 11 year old girl with katageners. Diagnosed at the age of 6, just by fluke, really. Although, Kalypso had a history of chest infections,  runny noses, coughs - our pediatrician was treating her for asthma and we were told she's a ' wheezy breather'! Holidaying on a small Greek island, a bout of gastroenteritis had Kalypso in a tiny hospital, the only child and a brand new doctor who was pleased to have a patient! They discovered her dextrokardia and after a little look on the Internet, we had a lightbulb moment... We are a Greek - British family living in Thessaloniki. Kalypso is treated at Ippokrateion hospital, and we have contacts at Leeds General Infirmary in the UK. 

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Primary ciliary dyskinesia is also known as...

Primary ciliary dyskinesia synonyms

Primary ciliary dyskinesia diet

Primary ciliary dyskinesia diet. Is there a diet which improves the qu...

Primary ciliary dyskinesia symptoms

Which are the symptoms of Primary ciliary dyskinesia?

Primary ciliary dyskinesia sports

Is it advisable to do exercise when affected by Primary ciliary dyskin...

Primary ciliary dyskinesia prognosis

Primary ciliary dyskinesia prognosis

Do I have Primary ciliary dyskinesia?

How do I know if I have Primary ciliary dyskinesia?

Prevalence of Primary ciliary dyskinesia

What is the prevalence of Primary ciliary dyskinesia?

Primary ciliary dyskinesia advice

Which advice would you give to someone who has just been diagnosed wit...