Skip to content
Story about Primary ciliary dyskinesia .

One in a million!

Dec 23, 2016


I am the mother of an 11 year old girl with katageners. Diagnosed at the age of 6, just by fluke, really. Although, Kalypso had a history of chest infections,  runny noses, coughs - our pediatrician was treating her for asthma and we were told she's a ' wheezy breather'! Holidaying on a small Greek island, a bout of gastroenteritis had Kalypso in a tiny hospital, the only child and a brand new doctor who was pleased to have a patient! They discovered her dextrokardia and after a little look on the Internet, we had a lightbulb moment... We are a Greek - British family living in Thessaloniki. Kalypso is treated at Ippokrateion hospital, and we have contacts at Leeds General Infirmary in the UK. 

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment