I understand that life expectancy is about the same as someone without PLS. There are no recent improvements in PLS. You can keep up to date by visiting the Spastic Paraplegia Foundation.
I am 61 years old and have had PLS for the last 26. I’ve been in a scooter/power chair since 2003, and after many years of getting weaker, my right arm went out of commission 3 years ago. I still have partial use of my left arm, and my voice/mouth/...