Story about Primary Orthostatic Tremor , Myotonic muscular dystrophy.

A Primary Orthostatic Tremor story

Jun 23, 2026


First light  sensations of tremors began between 1996 / 2000 and soon arrived problems of balance.  Doctor didn't know what was the problem ! He laughed at me and said I was stressed and tired !

I've been roaming so during long years,  about 10 years or more  and I found explains when searching on Web in 2011.

I've been diagnosed  EMG  18 Hertz in 2011

After quite 17 years with POT,  it  becomes difficult to walk cause of pains in my back 

 

Kind Regards to all

CLAUDE-ANNE

 

 

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