What are the latest advances in Relapsing Polychondritis?

Much new & updated research is being done. Especially at the NIH.

8/14/17 by Susan 2000

I don't know about this personally. I know that some RP patients are taking Biologics like Humira, but I think their disease is more advanced than mine. I am doing pretty well on Imuran and low doses of Prednisone.

9/1/17 by Diane 2050

There has been very little research into the study of Relapsing Polychondritis. In the UK, the main specialist is Professor D D'Cruz, Guys hospital, London.

3/20/18 by Lisa Matthews (Lissy) 4800

Unknown by me studies are being done

6/12/19 by Tmrcarlson 3550

NIH is investigating and researching relapsing polychondritis to help bring awareness and treatment into the future. They are making great advancement in understanding and diagnosing relapsing polychondritis. With advancement and awareness comes early treatment and less damage to the cartlidge of the body.

6/12/19 by Kaz 3000

The latest advancements in relapsing polychondritis are the biological drugs. There's no clinical trials due to it being so rare, and patients have to jump through hoops to be given the biological drugs. First line therapy is methotrexate and immune suppressor drugs.

12/30/19 by Leanne 2500

Research is far and few between as there are so few of us, but they are trying.

12/30/19 by Carrie 3050

Some new medications are on the market. I plan to try them, but medical expertise is low in my area.

3/20/22 by shlawver 2500

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I know, no

10/2/17 by Ana Luiza Bottura. Translated

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Until the moment the solution actenra is the best result you have

10/2/17 by Kevin Ochoa. Translated