- Retinitis pigmentosa
- Interviews
azkaren's interview
How did all start?
With blurred vision
Do you already have a diagnosis? How long did it take you to get it?
It took over a year, and I continued for almost.another year being diagnosed with more things, like Macular Degeneration.
What has been the most useful thing for you so far?
Finding the Retinitis Pigmentosa site in FaceBook
What have been your biggest difficulties?
Figuring out how to do this. How to prepare.
How has your social and family environment reacted? Have your social or family relationships changed?
My family is all busy living their lives. My friends have gathered around me and are supportive, with driving me around and checking on me.
What things have you stopped doing?
Driving, being able to read a usual page.
What do you think about the future?
I'm scared. But I believe God knows what He is doing.
So far, which years have been the best years in your life? What have you done during them?
My 50's were the best. I started the best job of all. I met the best man I the world for me.
What would you like to do if you didn’t have your condition?
I hope I would be traveling. If I can dream that my eyes are ok, I can dream that the RA is gone too.
If you had to describe your life in a sentence, what would it be?
Happy and full. Full of doing so many things that I enjoyed.
Finally, what advice would you give to a person in a similar situation?
Let's meet up and talk. It helps so much to hear I have it too.
