There is not a good answer to this question yet. What we do know is that many of our children have died young. We also know of a few adults who are in their late 30s and early 40s. But to date, no one has done a life expectancy study. And the data set is so small still that any estimate would have little statistical value. It is a good question though.
Expectancy doesnt change just because of the condition. There are different factors that can affect the life expectancy to my understanding seizures being being the largest factor.
As Joseph's sister I write this story on his behalf;
Joseph Worley was born full term on 25th May, 1960 following an uncomplicated pregnancy. Tom and Sonia were the parents of Brian and Clifford and Sonia had delivered her second baby, Mary at 7 m...
0-1years (1992-1993)
On January 21, 1992, Brooke Anne Costilla joined us in this world. She was born 6 weeks premature, weighing 5lbs. 6oz. Other than a couple of days in the oxygen tent and 3 days under a biliruben light, she seemed like a norm...