Which advice would you give to someone who has just been diagnosed with Rubinstein-Taybi Syndrome?

Advice for the newly diagnosed with Rubinstein-Taybi Syndrome, written by people who have lived it. What they wish they had known on day one.

Que tenga ganas de hacer cosas y lo intente siempre, que se apoye en sus personas cercanas y no tenga miedo nunca de hacer amigos.