Question - Russell Silver Syndrome
New here
Hello I'm new here and have been searching for support with RSS I have never met anyone that has it and I've been very alone with this all my life
Hello! There is a Facebook page for RSS. :) it's awesome support. I'm a parent of a child with RSS. I know as a parent we love when an adult living with RSS joins the group!
I don't go on Facebook much but I have seen the one for magic but not much for older adults when it comes to RSS but thank you
Magic doesn't have many posting
Hi, I am an adult with RSS. The group on Facebook is called TARSS teens and adults with Russell silver syndrome. There is also just a female group (not sure if there is a male only group) it's called Russell silver syndrome in women. I highly suggest you joining these! You can talk to so many people it's amazing support!! :)
Hi! I work with MAGIC in the RSS division and would be happy to help! www.magicfoundation.org or email me at [email protected]. The TARSS group on FB is great for RSS adults! The Day in a Life with RSS/SGA families is a great private page as well!
Thank you I am very greatful for all your answers I will try and check it out
I have asked to join TARSS under Sandi christenson but I can't use messaging sorry
Hi Sassy, Have you heard of the Child Growth Foundation they can be found http://www.childgrowthfoundation.org/ they are really great, very supportive, full of information. Check them out
hi
join the facebook group:
A day in the life-russell silver syndrome & sga families
Wow I really didn't know there was so much out there thank you all so much
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