I dont think RSS have less of a life span than a 'normal' person. So just go about life like you should.
There are many drs appointments so make sure you've got a good diary to manage them all. But never give up faith! :)
My son was born in 2010.
He was failing to thrive no matter how much i fed him.
When he was 3 we finally had genetic testing done our doctor was actually looking for something else when they discovered mupd7.
Hes now 6 years old and is also auti...
Our daughter Nancy Beatrice Nolan joined the world 3 weeks early on 19th August 2014, weighing in at 5lb 4.5oz.
In the weeks and months that followed Nancy failed to grow or gain weight as you would expect a baby would . She wasn’t taking much m...
IZAIAH
MY SON IZAIAH WAS BORN IN DECEMBER 2013 HE WAS BORN WITH HLHS AND SHONES SYNDROME BUT HES HAD LOTS OF HEART SURGERY AND HASN'T BEEN TO WELL SO WE PUT HIM NOT GROWING DOWN TO THAT BUT THIS YEAR I ASKED ABOUT DWARFISM AND WE WENT TO SEE AN EN...