2. Sandhoff Disease
3. Interviews

JSE's interview

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How did all start?

N/a

Do you already have a diagnosis? How long did it take you to get it?

Yes

For what medical specialties have you been treated? What has been the most useful specialty for your?

N/a

What has been the most useful thing for you so far?

N/a

What have been your biggest difficulties?

N/a

How has your social and family environment reacted? Have your social or family relationships changed?

N/a

What things have you stopped doing?

N/a

What do you think about the future?

N/a

So far, which years have been the best years in your life? What have you done during them?

N/a

What would you like to do if you didn’t have your condition?

N/a

If you had to describe your life in a sentence, what would it be?

N/a

Finally, what advice would you give to a person in a similar situation?

N/a

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