- Sarcoidosis
- Interviews
Crls89's interview
How did all start?
I called an ambulance in 2006, because I thought I was having am heart attack. Drs did xrays and saw a large mass I my chest. My Dr called me on the phone and told me that I had lymphoma and that it had spread to my stomach area. One of the longest and scariest night of my life, had nightmares the whole night. Then tests and removed most of it because they thought is was lymphoma. (Dr said "if he know it was sarcoidosis he wouldn't have removed anything.")
Do you already have a diagnosis? How long did it take you to get it?
It took about 2 weeks to get diagnosed.
For what medical specialties have you been treated? What has been the most useful specialty for your?
Neurologist has been the best specialist for me so far.
What have been your biggest difficulties?
exhaustion
What things have you stopped doing?
Being spontaneous, going outside for any reason.
What do you think about the future?
The Drs will figure this out.
So far, which years have been the best years in your life? What have you done during them?
I am still enjoying the ride even through the pain, the best is yet to come.
What would you like to do if you didn’t have your condition?
I would be teaching.
If you had to describe your life in a sentence, what would it be?
It's a wonderful life.
Finally, what advice would you give to a person in a similar situation?
Trust your instincts, you know you're body best. Don't continue to take meds that are no longer working for you. Research your meds.
