- Sarcoidosis
- Interviews
Craigtooley's interview
How did all start?
Loss of weight, constant pain Generally feeling unwell.
Do you already have a diagnosis? How long did it take you to get it?
Yes, had a biopsy to confirm.
What has been the most useful thing for you so far?
Regular specialist consultancy.
What have been your biggest difficulties?
Having to adjust how I live my life.
How has your social and family environment reacted? Have your social or family relationships changed?
No.
What things have you stopped doing?
Been able to do anything which limits the amount of oxygen I can take in.
What do you think about the future?
Just hoping that it doesn't spread any further or attack other organs.
So far, which years have been the best years in your life? What have you done during them?
Birth of my son.
What would you like to do if you didn’t have your condition?
Learn scuba diving
If you had to describe your life in a sentence, what would it be?
A struggle.
Finally, what advice would you give to a person in a similar situation?
Go see your doctor aa early as possible.
