A Sarcoidosis interview , Ollier disease.

Nadia's interview


How did all start?

Sarcoidosis started as lumps on my shins Ollie started as lumps on my fingers

Do you already have a diagnosis? How long did it take you to get it?

Sarcoidosis age 11/12 Ollie age 4

For what medical specialties have you been treated? What has been the most useful specialty for your?

Cardiologist specialist

What has been the most useful thing for you so far?

Not alot

What have been your biggest difficulties?

Side effects from medications

How has your social and family environment reacted? Have your social or family relationships changed?

Was put in care

What things have you stopped doing?

Sports

What do you think about the future?

Future has been great am now married with 2 kids

So far, which years have been the best years in your life? What have you done during them?

24 onwards just growingmaking better life choices

What would you like to do if you didn’t have your condition?

Sports

If you had to describe your life in a sentence, what would it be?

Now - happy

Finally, what advice would you give to a person in a similar situation?

Don't give up, take any support u can


Aug 7, 2018

By: Nadia

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