My journey
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IN JUNE OF 2008 I BECAME VERY ILL MY LEGS WERE LIKE BALLOONS, I COULDN'T WALK FOR THE PAIN AFTER SEEING NUMEROUS DOCTORS I WAS TOLD I NEEDED A LUNG BIOSPY TO CONFIRM MY DIAGNOSIS. I WAS TOLD I EITHER HAD LYMPHOMA OR SARCOIDOIS. MY BIOSPY CONFIRMED SARCOIDOIS. I NOW HAVE IT IN MY LUNGS MY JOINTS AND MY NERVOUS SYSTEM.
3 comments
<p>I'm so sorry to hear this. I also have it in my lungs and Neuro sarcoidosis. I just lost the hearing in my left ear. Remicade worked great for the lungs for me. It doesn't work for the brain or nervous system. I'm also on steroids now. </p>
Commented 10 years ago Angel 58
<p>Itâs been a while since you posted your story. I hope things are getting better for you!</p>
Commented 7 years ago Rika 1930
<p>My chronic pain continues daily my pain in my nerves and bones is the worst. My heart breaks for anyone suffering from this disease</p>
Commented 7 years ago Dorothy 510
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