Story about Sarcoidosis .

Sarcoidosis destroyed my life

Jan 15, 2016


When I turned 30, I got very sick. I could not work. I went from 160lbs., to 110lbs. I started going to doctors 2-3 times per week, every week. Yet no one could find the problem. I kept offering out my family history, but that was always dismissed. After about 1.5 years of this, I complained of a pain just below my rib cage. I was told it was liver and spleen. I was immediately sent to a specialist. He studied my history for quite a while, and after two visits, learned it was sarcoidosis. 

Sadly, over the years it has caused extensive damage to my body, including: liver, spleen, lungs, heart, kidneys, skin, bones, joints, tendons, brain, eyes, etc. Those I what I recall at the moment. They are in no particular order. 

This has NOT been a fun road to travel. I hope they can find a cure that can help all afflicted. 

Know someone who should read this story? Share it

1 comment
0

Have you tried Remicade? It works well for mostly all sarcoidosis except the brain and nervous system.

Commented 10 years ago Angel 58

Login or register to leave a comment


Natural treatment of Sarcoidosis

Is there any natural treatment for Sarcoidosis?

Sarcoidosis treatments

What are the best treatments for Sarcoidosis?

Is Sarcoidosis hereditary?

Is Sarcoidosis hereditary?

Celebrities with Sarcoidosis

Celebrities with Sarcoidosis

Sarcoidosis advice

Which advice would you give to someone who has just been diagnosed wit...

Do I have Sarcoidosis?

How do I know if I have Sarcoidosis?

ICD9 and ICD10 codes of Sarcoidosis

ICD10 code of Sarcoidosis and ICD9 code

Latest progress of Sarcoidosis

What are the latest advances in Sarcoidosis?