A Sarcoidosis story
Jun 23, 2026
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It has taken three years to finally diagnose a rare form of sarc. I have NSG necrotising sarcoid granulomatosis. Yep thats a mouthful. It took lots of bloodwork, and xrays, multiple cts, a pet scan, three MRI's and four doctors and a lung resection, and I still have to explain it and carry my records everywhere with me. I was lucky to get the advice "fight for yourself", and it has made all the difference in getting answers. There are bad days and good ones, and you havent seen the last of me!
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