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Living with Scleroderma. How to live with Scleroderma?
Can you be happy living with Scleroderma? What do you have to do to be happy with Scleroderma? Living with Scleroderma can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Scleroderma
Just be optimistic and hopeful. Be with people who understands your situation, I know its a rare disease and people do not know about it still, so our role is to educate them that we have this disease but we are living happily with it
Posted Apr 1, 2017 by Fashah 1150
It is all in the mind... think positive, stay positive. It is not easy. Accept your limitations and work around it. It also helps to share your feelings... don't keep quiet about your condition.
Posted Apr 1, 2017 by Milda 1000
Systemic scleroderma is a life changing experience for anyone. It often puts major stress on marriages as it is often has many "invisible" symptoms such as pain and fatigue. Many patients are finding that joining one or more support groups, both online and locally (where available) is a wonderful way to connect with others and get tips but also to help others by giving support and providing information about their own experiences with drugs or ealing with specific symptoms.
In my case, I made the unusual journey from being diagnosed in 1990 to now becoming an educator and published researcher. I also spend a couple of hours a day helping others, which I find very satisfying.
In my case, I made the unusual journey from being diagnosed in 1990 to now becoming an educator and published researcher. I also spend a couple of hours a day helping others, which I find very satisfying.
Posted Apr 4, 2017 by Choclit 1150
To live with Scleroderma just take one day at a time. Enjoy your good/great days and try to brush off the not so great days! Stay in tune with your body and see your doctors regularly. I believe positivity is the key!
Posted Mar 30, 2018 by Amy 2600
I've lived with Scleroderma for sixteen years. I am thankful for all that I am able to do even though I am limited at times. I read a perfect strategy for those with Scleroderma: "I have Scleroderma, it doesn't have me!" I keep that in my head when I feel down. Life is worth living and it is a mantra for me. Live each day with the gifts you have. If you cannot get out of bed: use the time to read and grow; visit others on the Internet; join an advocacy group; help those worse off than you. Consider what you 'can' do.
Posted Nov 21, 2018 by Juanita 1900
Translated from spanish
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It lives not have to. He is not happy. You can never be happy because your body will never be 100 x 100
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assume that it is a disease character of chronic and irrecoverable, that there are measures to prevent some of the symptoms and the situation of evolution depends on each case so that they serve also join support groups and to change life style
Posted Feb 27, 2017 by cecilia miranda 1000
Translated from spanish
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You can live, but bearing in mind the limitation of each. You have to be positive to try to be happy
Posted Mar 21, 2017 by Amparo 1000
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To be happy with scleroderma should only be to accept the disease consume foods and healthy beverages, go to the right specialist and to remain emotionally balanced
Posted Mar 23, 2017 by ana h 1400
Translated from spanish
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The most difficult question to answer. Yes you can be happy, but sometimes that is impossible. The pain that a patient feels daily, and the face of a society that for all it limits, judges, and discriminates, I think those factors would take away happiness to your life. It is very difficult to give an answer.
Posted Apr 28, 2017 by Alma Olivia 1000
Translated from spanish
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Follow it to the letter with the treatment , try to be as relaxed as possible to learn to control nerves and accepted connla disease , assume that you have this disease and you will have all ur life , therefore, is not alone these with it , or do you do of your illness, your friend and follow the doctor's advice your life will be more easy.
And everyone can be happy happiness is a matter of attitude not of a disease .......
And everyone can be happy happiness is a matter of attitude not of a disease .......
Posted May 11, 2017 by Tatiana 1135
Translated from spanish
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The main thing is to accept it, not fight it, remember that it is something that our own body produces, that is why it is autoimmune, then do not fight against yourselves. When we accept it we can begin to understand and be happy again. The time is short and life difficult to enjoy what we have left
Posted May 15, 2017 by Lucero 1050
Translated from portuguese
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Yes.
In spite of the pain.
Live each day and enjoy all the moments.
In spite of the pain.
Live each day and enjoy all the moments.
Posted Sep 30, 2017 by Carol 1000
