I was disabled from Jury Duty and 99.99% of work outside the home in 1990 because of anxiety disorders that are a logical result of so much pressure on your body for decades.
Everyone is different. Apparently of the 1 / 1,000,000 people with SFPN, very few have Severe Rhinitis flu symptoms. These made it necessary to have very flexible jobs and work from home for years on my own ever-changing schedule. HIDING your illnesses is a challenge.
However, in my case, at age 45, the Autonomic Nerve Losses of my Esophagus, Stomach and Intestines made any work impossible. At that point I was hoping to die in my sleep. No such luck. Prior to that I had diminishing abilities from 18 to 45 that depended on quality of weather (dry, not too hot, CLEAR, as well as consistent). I moved from Los Angeles to San Francisco as it was an air-conditioned city but since 2003 and especially 2013 the humidity there is dramatically higher with the warming Pacific. You can confirm this via NOAA and keep in mind that the Trump Admin defunded it for 4 years so that period of knowledge was greatly lost.
I WOULD SAY THAT WORK AT WHAT YOU CAN AND SAVE AND PLAN THAT YOU WILL BE FULLY DISABLED SOON. SFPN was not "discovered" when I was in my early years of illness and and in my 40s it was not discussed by most Neurologists who were not even open signing the extra paperwork to sending me to Harvard, a process that took me over 6 years.
KEEP RECORDS OF ALL YOUR MEDICAL VISITS AND DIAGNOSES (EVEN THE WRONG ONES) IN CHRONOLOGICAL ORDER AS YOU WILL HAVE TO PROVE TO THE FEDERAL USA GOVT YOU ARE DISABLED AT SOME POINT. IN MY CASE, I HAD 200O PAGES OF SUB-ILLNESS INFORMATION BUT NOT THE EXPLANATION (EVEN WITH THE POSITIVE BIOPSY 2 YEARS PRIOR TO MY HEARING) AS TO WHY I HAD SO MANY ILLNESSES. THIS ALLOWED THE FEDERAL GOVERNMENT TO DENY ME THE INCOME AND HEALTH INSURANCE (MEDICARE VS MEDICAID) FOR WHICH I PAID TAXES.
In those days "SFPN" was NOT listed in most hospital computers. NOW it is listed and if you have it you should be able to recognized as fully and progressively disabled. With that designation from the FEDERAL Government you can get off welfare from the States and you can still work when/if you are able with no loss of income or health care. With Medicaid you can NOT go back and say, "here is the 100% proof you overlooked or we didn't have."