What are the best treatments for Smith-Lemli-Opitz Syndrome?
Treatments for Smith-Lemli-Opitz Syndrome: what real patients say works for them, alongside a medically reviewed overview citing sources like NIH GARD and Orphanet.
I added my daughter Robyn she was born on the 07/10/13 and lived for 26 hours. I have just found out 2 years on that she had smith-lemli-opitz syndrome and that i'm a carrier. I found out at my 20 week scan that my baby was very ill and had a major h...