Story about Spinal muscular atrophy with respiratory distress type 1 .

Kate's story

Feb 9, 2016


Kate started showing symptoms at 6 weeks old and passed away at 12.5 weeks old.  Her official SMARD1 diagnosis wasn't received until 2 weeks after her death.  her full story can be found here:

 http://karryonkate.blogspot.com/p/about-kate.html?m=1

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Is Spinal muscular atrophy with respiratory distress type 1 contagious?

Is Spinal muscular atrophy with respiratory distress type 1 contagious...

Natural treatment of Spinal muscular atrophy with respiratory distress type 1

Is there any natural treatment for Spinal muscular atrophy with respir...

Spinal muscular atrophy with respiratory distress type 1 prognosis

Spinal muscular atrophy with respiratory distress type 1 prognosis

Spinal muscular atrophy with respiratory distress type 1 treatments

What are the best treatments for Spinal muscular atrophy with respirat...

Spinal muscular atrophy with respiratory distress type 1 advice

Which advice would you give to someone who has just been diagnosed wit...

Couple and Spinal muscular atrophy with respiratory distress type 1

Is it easy to find a partner and/or maintain relationship when you hav...

Is Spinal muscular atrophy with respiratory distress type 1 hereditary?

Is Spinal muscular atrophy with respiratory distress type 1 hereditary...

Prevalence of Spinal muscular atrophy with respiratory distress type 1

What is the prevalence of Spinal muscular atrophy with respiratory dis...