Story about Spinal muscular atrophy with respiratory distress type 1 .

Kate's story

Feb 9, 2016

Spinal muscular atrophy with respiratory distress type 1

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Kate started showing symptoms at 6 weeks old and passed away at 12.5 weeks old. Her official SMARD1 diagnosis wasn't received until 2 weeks after her death. her full story can be found here:

http://karryonkate.blogspot.com/p/about-kate.html?m=1

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