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Is it advisable to do exercise when affected by Spinal Muscular Atrophy? Which activities would you suggest and how intense should they be?

Exercise with Spinal Muscular Atrophy: which activities patients recommend or avoid, and what the evidence says.

Spinal Muscular Atrophy sports
6 answers
Physiotherapy is of added value, but only mild. Tiredness can have negative influence. Water activities are very helpful.

Posted Feb 22, 2017 by Daniel 1011
Yes, exercise is very crucial. Every exercise or movement has its own importance but i focus more on stretching, extension and spinal exercises to avoid contractures and sciolosis

Posted Feb 23, 2017 by ugyen 1000
Physiotherapy is very-very important, stretching and moving all muscles. Excercises in water are also very helpful and fun :-)

Posted Feb 25, 2017 by Andrea 500
Translated from spanish Improve translation
It is important to matenerse agile within each of our possibilities and to do so according to our desire and endurance with moderate intensity

Posted May 10, 2017 by Carmen 1370
Translated from spanish Improve translation
Therapy for the muscle tone

Posted Aug 3, 2017 by Marycielo 2000
Translated from french Improve translation
If you go the hall you can stop, all sports are recommended (the pool a little more than the other) if they are not too regular kind not more than 4 times per week and, once again, avoid competition with non-sick kind your buddies,parcque will take you longer to recover than others.

Posted Nov 22, 2017 by 2000

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Charlotte & Wayne lost their first daughter Annabelle Rose when she was just 7 months and 12 days old due to a genetic muscle wasting condition called Spinal Muscular Atrophy. Annabelle had Type 1 which is the most severe form of the condition and ta...
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My son Grady was born on May 15th 2015. He wasn't due until June 19th but since I had polyhydraminos my water broke on May 13th. I had noticed while I was pregnant that Grady didn't move near as often or as much as my daughter did during my first pre...
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I was born on March 5, 1949, in a poor neighborhood of Lima, Peru, in a time where most houses had no electricity and radio music was a luxury only afforded by the few. The television had not yet come to the country and Internet was unimaginable. htt...
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My daughter has a SMA type1 , the start of the disease in 5.5 months. She is 17 months. She is breathing on her own. Little holding her head. Raises handle. She begins to talk.
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No less than two neurologists have diagnosed me with SMA, but I have to say, I'm pretty sure I DON'T have it. I'm strong, graceful and powerful... the only symptoms I'm experiencing are speech slurring, weak tongue and lips and mild difficulty breat...

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