- Stiff Person Syndrome
- Interviews
CHRISTINA's interview
How did all start?
Born with Ehlers Danlos .2006 Bullseye no medicine till 2013 CDC Positive for Lyme Disease. Severe muscle spasms from head to toe since 2011 . Full body since 2015 . Then diagnosed 2017 with very high Gad in blood and spinal fluid.
Do you already have a diagnosis? How long did it take you to get it?
Yes took a few years.
For what medical specialties have you been treated? What has been the most useful specialty for your?
Neurologist best one
Internal Medicine
Infectious Disease
Rhemitolgist
What has been the most useful thing for you so far?
Not sure to soon to tell
What have been your biggest difficulties?
Being able to pick thing up and walk straight and very bad bad spasms stuttering
How has your social and family environment reacted? Have your social or family relationships changed?
It’s becoming sadder. Everyone and thing is different
What things have you stopped doing?
All kinds lmao many to list
