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Story about Sturge Weber Syndrome .

Amelia-miss Millie

Jul 13, 2026

By: Mary Kolb


amelia was born Sept 2,2014. She has Sturge Weber. She had a hemi in Sept of 2015 due to seizures. She has been seizure free so far. She a port wine stain over most of her face and has had three lazier treatments so far. She had Glaucoma surgery at 4 months and is doing well. 

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