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Living with Syringomyelia. How to live with Syringomyelia?
Living with Syringomyelia: how patients cope day to day and stay positive - real experiences and practical tips.
Yes you can live with it. For me, it's a mental game because I think of what I used to be able to do, but can't now. You have to find ways to adapt what you could do with what you can do now.
Posted May 22, 2017 by Christina Douthit 1001
Enjoy your life each day. Stay positive And productive
Posted May 30, 2017 by Linda 900
Reach out to others who live with it. Find support groups weather through social media or treating doctor. Finding humor, use coping skills to keep stress down, such as meditation, mandala coloring books, And my all-time favorite is singing. Vibration from singing helps to bring the pain down. Also releases endorphins.
Posted Mar 22, 2018 by Tammie 4000
It's just a bump in the road. There are adjustments, limitations you'll have to make but that doesn't stop you from having a full happy life ! Surround yourself with good and positive support. Keep moving forward and follow your dreams !
Posted May 21, 2018 by Sue 1400
Limits. Limits. Limits. Know your limits and do not push them. Sometimes you need to get creative and figure out new ways to do things. Consider Occupational therapy when things get worse. Explore your hobbies and find new ones.
Posted Sep 20, 2018 by Austyn 3500
Realize that you have this disorder but do not allow it to consume you. I'm certain you have heard of the term before called self-fulfilled prophecy.
If you continue to tell yourself that because your father died of a heart attack that you're going to die of a heart attack, you will. And don't be prone to suggestion, ie., placebo effect syndrome
If you continue to tell yourself that because your father died of a heart attack that you're going to die of a heart attack, you will. And don't be prone to suggestion, ie., placebo effect syndrome
Posted Jun 24, 2019 by Jack 2200
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Enjoy the day day not to think of the pain and not complain to any person for the disease to stay indoors and so are dying is always smiling
Posted May 16, 2017 by María Angélica González gallon 1800
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I the days that I am very wrong not to go out almost to the street, but the day that I meet well I attempt to do my normal life is so you can not work because it is impossible to
Posted Nov 17, 2017 by Raul 500
