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Which advice would you give to someone who has just been diagnosed with Tetralogy Of Fallot?

See some advice from people with experience in Tetralogy Of Fallot to people who have just been diagnosed with Tetralogy Of Fallot

Tetralogy Of Fallot advice
9 answers
Support is everywhere! You just have to find it! You and your support are he biggest advocates for this condition. You have a special heart but that doesn't mean you're any less.

Posted May 16, 2017 by Amanda 1000
Don't panic. The technology and help now is fantastic compared to when it was first diagnosed. Go to counseling if you need to. Ask questions. You are not or will ever be alone.

Posted May 17, 2017 by Kathleen83 1100
Keep calm and seek medical attention from a cardiologist.

Posted Feb 16, 2018 by Janco 3020
Be encouraged that medical professionals know more today through the pioneers of yesterday.
Tetralogy of Fallot is not the end but an opportunity for you to encourage tomorrow's children and their families.
Ask as many questions as you need in order to understand and appreciate your amazing heart.
Years ago my son endured several open heart surgeries, his last procedure was done through his artery replacing a valve.
Amazing! I was told he would not survive, he is now 29 years old [2018]. You can a have a life filled with love, challenges, laughter, tears,and victories. Go enjoy it!

Posted Apr 11, 2018 by Bear 1100
I wouldn't know since this is a birth defect.

Posted Dec 17, 2018 by Tim 1600
Translated from portuguese Improve translation
Do not despair, it is serious but occurs all as well.

Posted Aug 21, 2017 by Mayara Oliveira 1000
Translated from portuguese Improve translation
It is a disease compatible with life
Thank God there is total correction surgery
Believe in life

Posted Sep 27, 2017 by Clarice 1000
Translated from portuguese Improve translation
Look for information with people and relatives of heart disease with T4F. There are pages on Facebook, associations, such as the Small Hearts (Brazil), which assist and provide information and comfort to patients and family members.

Posted Sep 28, 2017 by Tatiana Marchesi 1590
Translated from french Improve translation
Do not panic and trust the doctors . It is important . These days there has been a large progress in medicine .

Posted Oct 5, 2017 by Morgane 2000

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Stories of Tetralogy Of Fallot

TETRALOGY OF FALLOT STORIES
Tetralogy Of Fallot stories
Facebook.com/andysswim
Tetralogy Of Fallot stories
My wife and I had Cam after 3 miscarriages. We were blessed on 3/8/17 with him. I had never heard of TOF before we found out. Its been scary but we are ready to stand string together. You can see more at  https://www.facebook.com/camerontof/  
Tetralogy Of Fallot stories
Open heart surgery full repair in 1986 Open heart tricuspid valve repair and pulmonary valve replacement 2006 Ablation for SVT. ICD implanted 2014 Ablation for V-fib 2017
Tetralogy Of Fallot stories
_Our 20 week scan... the day that shook our happy ever after pregnancy._ _Our twins Florence Ivy and Nancy Rose were the icing on the cake for our family, the babies that would blend our 2 families together. _ _At Our scan we were told twin 2's h...
Tetralogy Of Fallot stories
Little one due any day now... July 26, 2017. TOF.  Scared momma. I haven't set up the nursery or made any decorations because I am afraid of having to come home empty hearted...and take everything down. 

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Tetralogy Of Fallot forum

TETRALOGY OF FALLOT FORUM
Tetralogy Of Fallot forum
My name is Evan, I'm 13 years old and I'm 4'8. I read that TOF affects growth so I'm wondering when I will get taller or how tall I will be. My male relatives are generally tall, for example, my grandpa is 6'3-6'4 so I'm wondering if that has any eff...

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