- Transverse myelitis
- Interviews
Dramos17's interview
How did all start?
Started having lots of back pain , headaches day and night . Back pains got worst , I couldn’t sleep due to the severe pain , I would have to walk all night around the house to ease the pain , until one day I had bladder disfunction, that’s when I went to the ER AND AFTER LOTS OF TEST , an MRI they confirm I had TM .
Do you already have a diagnosis? How long did it take you to get it?
Just TM , it took me about two days to know what it was . At first they were thinking I had meningitis until test came back negative
What have been your biggest difficulties?
Bladder disfunction, I’m able to go on my own but it’s not the same . (Not going into detail)
How has your social and family environment reacted? Have your social or family relationships changed?
Not at all , everyone has been really supportive
What things have you stopped doing?
I stopped going out more
What do you think about the future?
I think I’ll get better W/ my bladder problems in the future ....at least that’s what I’m hoping !
So far, which years have been the best years in your life? What have you done during them?
2016 , when I had my son ❤️
What would you like to do if you didn’t have your condition?
Go out more , enjoy life more ...you never know what can happen the next day .
If you had to describe your life in a sentence, what would it be?
My life is good , I’m very lucky to be this fortunate and not be paralyzed.
Finally, what advice would you give to a person in a similar situation?
Stay active , dont over do it though ! Respect how tired you are and just rest when you need to . TM can be very exhausting.. and have hope that whatever your situation is THINGS WILL GET BETTER ❤️
