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Story about Transverse myelitis .

I have transverse myelitis but it doesn't have me. ❤️

Feb 13, 2016

By: Kelly


My story begins in 2010 ,my autoimmune system decided to go on vacation.  I got one thing after another.  First interstitial cystitis, then tumors in my uterus, then adenomyosis to start.  All painful and frustrating.  So I ended up with bladder surgery, then a hysterectomy which obviously helped my uterus problems thank God.   Then I was still struggling with my IC.   Going and getting heparin instillation several times a week directly in my bladder to control the pain.  So once TM decides to join the party, my not being able to pee was blamed on my IC. I had a foley on and off.  I had horrible back and ankle pain then they had me cath myself.   Finally my urologist felt it was more and sent me for a MRI and that's when they found my lesions. I went to university of Penn and they diagnosed me and I spent 8 days not hardly able to walk, the pain in my legs and ankles and back was almost unbearable.  I received 5 bags of steroids and other meds.  Then 6 months later I returned for another 7 days in horrible pain where I just screamed out.  All the morphine did was confuse me.  The gabapentin was my greatest. It really helped.  I lost my job working with kids. Had to stop working with kids at my church. Couldn't be their chaperone.  I had to learn a new way to live be useful.  Then I realized I am worthy I am valued.  I have wonderful friends and kids.  The other thing I learned was that even though TM sucks, I still love my life, I still have my life. Maybe different then it was but thank God I am still here.  I have good days and bad days.  I am always grateful.   I mostly have my IC under control and I learned how to manage and learn my limitations of TM.   Praying for you all

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<p><strong></strong>Thank you for sharing your story with us. &nbsp;I Love the title. &nbsp;I was diagnosed September 2015. &nbsp;My life, like yours was flipped upside down. &nbsp;I'm learning to live with My limitations but muy God it's difficult. Rather than accepting this is whay life looks like now I'm fighting tooth and nail. &nbsp;Paying the price every day. &nbsp;Anyway... Wanted to day Thank you for sharing your message.</p>

Commented 9 years ago Jenn 10

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