Story about Transverse myelitis .

My TM was the side-effect of a neccessary treatment.

Feb 29, 2016


First diagnosed as peripheral neuropathy in 2003, and believing it was the result of extensive use of Flagyl, my TM was not diagnosed until I sought an examination by a specialist in a local MS Clinic due to advancing symptoms.  A neurologist associated with that clinic confirmed through nerve testing that I had both TM and PN.  However, it wasn't until a new gastroenterologist wanted to try Remicade again for my Crohn's disease that the connection to my TM was made: my medical team now believes it is most likely that my TM was the result of Remicade infusions done in 2002-03 for Crohn's symptoms discovered during surgery for my j-pouch (post-colectomy).  While the Remicade did clear up fistula growth and allowed completion of the j-pouch procedure, apparently it triggered inflammation in my T-spine. 

I live with near constant and chronic pain in the lower extremities, spasticity, occasional vertigo, cognitive issues, tinnitus, and fatigue.  The medications I have tried for my TM symptoms have consitently been found to increase my Crohn's issues or cause other side effects.  I moved to Washington State 20 years ago to backpack the mountains and forests . . . and this is what I miss most of all.

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Transverse myelitis symptoms

Which are the symptoms of Transverse myelitis?

Celebrities with Transverse myelitis

Celebrities with Transverse myelitis

Prevalence of Transverse myelitis

What is the prevalence of Transverse myelitis?

Transverse myelitis treatments

What are the best treatments for Transverse myelitis?

Transverse myelitis jobs

Can people with Transverse myelitis work? What kind of work can they p...

Living with Transverse myelitis

Living with Transverse myelitis. How to live with Transverse myelitis?

Transverse myelitis diagnosis

How is Transverse myelitis diagnosed?

Natural treatment of Transverse myelitis

Is there any natural treatment for Transverse myelitis?