ANOTHER rare disease????

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I am a 12 year Sarcoidosis survivor.  I have been recieving Remicade for the last 10 years and Feb 2017 I was diagnosed with Transverse Myelitis as a result of a reaction my body was having to the long term Remicade.  The doctors at Johns Hopkins decided it was from the medication and NOT from the Sarcoidosis itself.  I immediately recieved IV steroids for 3 days and went home from the hospital on 60 mg for 3 months.  I stopped recieving remicade and now have pain in all my joints.  The back pain was severe with TM and after trying all the neurologic pain meds, (gabapentin, lyrica) I decided to give CBD oil a try....It worked for me!!!!  I did PT outpatient for 6 weeks and was lucky to not be completely paralyzed.  I am affected on my entire right side at 50% strength and entire left side is only 30% strength of what I used to be.  I have a substancial lesion on T10 and another smaller and appears older lesion on T9.  At the 3 month mark I had another round of MRI's and they showed the growth had stopped but the lesions were both still there.  Lesion takes up almost 95% of my spinal cord space and all the drs cannot understand how Im still standing or walking.  Ill let God have that credit.  I walk with the help of a cane or mobility dog for balance for short distances but am in a wheelchair for long distances like shopping, Dr. office visits and travel.  I have a power assist chair collapsible chair which is awesome for my weaker upper body.    I am finding life is hard to maneuver from a wheelchair.   Im terrible at opening doors!!!!

I try to eat low carb, gave up suger and caffiene.  I gained 25 pounds from the prednisone and have not been able to loose it yet.  Other then that, I am trying to take each day as I can and keep my chin up on those bad days.  Its not about the disease, but how I deal with it that defines me!