Waiting for a MRI
Lidocaine inside ear canal and outside area to dull pain
Magnesium, Vitamin B,D and Cats Claw help lessen the pain.
Having good support from my family.
Heating Pads and/or ice, scarfs & compounded creams
Finally finding a Doctor who knew exactly what TN was an a plan of attack for treatment
Breathing techniques
MVD 1/5/15 gave me my life back!!!
My husband's support
Spreading the word and information so others and also Drs. are better prepared to diagnose this disease properly
I volunteer for Citizens Advice Bureau one day per week when I can. There is always someone worse off than me although not usually pain.
Accepting my life has changed forever and learning to live with the TN and develope my life in a different direction
I also find the cold eases mine where heat makes it worse
Chocolate ice cream sodas
Avoiding Hard, crunchy foods, avoiding stress, having very short hair, Making myself REST
Family/friend/pet support
Exercise keeps my mind off the pain
Meds
Sabbatical :)
staying inside out of the cold & heat
Love & Support of family & friends these past 9 years has helped me fight TN
Several months of remission each year.
Neurological Stimulator implant
Being able to keep the lightening in my home either off or dim all the time. Wearing sunshades when I can't.
Learn to live in the moments-in-between. Those times when the pain is so low you can actually DO something, but you're afraid of triggering an attack. Well, maybe you will. But maybe you won't. Get out there and live FEARLESS.
I use Remag magnesium along with Dr. Dean's other products as I like the pico ionic size that is absorbed 100% at the cellular level.
My fiancée is my rock, he is always here for me
Apply heat when possible
Micro vascular decompression surgery
On maximum dose of Gabapentin 3600mg/day, Tegretol 900mg/day, Amitriptyline 40 mg, Citalopram 40mg/day, having occassional hallucinations and lose awareness of where I am so no more meds
Social. Staying connected with family and friends.
Drinking straws
Currently Gabapentin
A wonderful neurosurgeon who has saved me many times
Soft food diet, online support groups, talking to friends and family
Keep myself motivated even on my worst days with pain.
A grandchild who depends on me
avoiding my triggers always helps
Oh yeah....And Tegretol
Finding a hobby that makes ME happy
less stress/ anxiety
i love my car, it breaks foen sl8t but still 14 years old subaru imprezza P1. car is my fredom. other cars are difficult to drivr and heavy steering, way better thsn electric chair on bads i cant walk nor drive.
Life is not over, harder but not over!
having my husband or daughter rub my back or pet my dog. companionship
Trigeminal neuralgia site
A loving husband who stands by me and fights with me.
Hugs from my Son