2. Trigeminal Neuralgia
3. Interviews

Sindy's interview

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How did all start?

I was in severe pain, 10/10. Went to dentist and they couldn't find anything wrong. Ended up in emerg where I was diagnosed

Do you already have a diagnosis? How long did it take you to get it?

I was diagnosed my first time in emerg so no time at all

For what medical specialties have you been treated? What has been the most useful specialty for your?

Just my family doc, not very useful

What has been the most useful thing for you so far?

Just knowing why I was in pain

What have been your biggest difficulties?

People understanding the pain

How has your social and family environment reacted? Have your social or family relationships changed?

I don't work anymore, so I live very frugally

What things have you stopped doing?

Working, extended periods in the cold, eating hard to chew foods

What do you think about the future?

I hope there is a cure someday

So far, which years have been the best years in your life? What have you done during them?

My 30's when I was working and feeling relatively good

What would you like to do if you didn’t have your condition?

Enjoy a pain free day

If you had to describe your life in a sentence, what would it be?

A struggle

Finally, what advice would you give to a person in a similar situation?

Just keep going

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