Story about Trigeminal Neuralgia .

Face pain

Jun 23, 2026


My ordeal started 3 years ago. I woke up one morning first with scalp burning. Didn't know what caused it. ER doctor informed me that I had occipital neuralgia. 4 months later, burning in right side of face, extreme pain. Another ER doctor informed me I had atypical neuralgia. Was told by 3 other specialists the same thing. Since then have been on 2800 mg gabapentin, 30 mg nortryptyline, 30 mg baclofen. Been a daily struggle to keep on keeping on.

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