A Truncus Arteriosus interview , Antiphospholipid / Hughes Syndrome.

Samantha's interview


How did all start?

I was born with TA, and had a valve places at 9 days old, then another at 2, and another at 5, and my 4th OHS was at 10 years old. I was diagnosed with APS at 4 months old. I'm now married with a son, and about to have my 5th surgery, at 20 years old.

Do you already have a diagnosis? How long did it take you to get it?

I got it after 4 days of being alive for TA, and 4 months for APS.

What have been your biggest difficulties?

Overcoming anxiety, and getting over the fact I will always need another surgery.

How has your social and family environment reacted? Have your social or family relationships changed?

They have been with me through it all.

What do you think about the future?

I think that I want more kids.

So far, which years have been the best years in your life? What have you done during them?

My adult years. Ive gotten pregnant, and married.

What would you like to do if you didn’t have your condition?

Go mountain climbing. Ride a rollercoaster,

If you had to describe your life in a sentence, what would it be?

My life is my own personal rollercoaster, and I love it.

Finally, what advice would you give to a person in a similar situation?

Just pray, and love every day you're given.


Mar 8, 2018

By: Samantha

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