Story about Truncus Arteriosus .

Tilly-hope

Sep 11, 2017

By: Julie

Year Condition Began: 2007


It's my nearly 10yrs old that has ta1 so far has had 3 ohs, 1st one at 15 days old last 2 she was 5yrs old had to do 3rd after 2nd repair didn't go to well and resulted in tilly now having constant migraines head and tummy also croup. She's on meds for both daily. She has a narrow airway also on a med for that also. Heart wise at last check up 3 wks ago all good and no meds for nearly 4 yrs.
Today she's a very lively child has more energy than her siblings she is number 5 out of 6 have a meeting at school soon to talk about her being tested for adhd as she is so lively and on the go all the time and has sleep problems.
Hobbies she plays football joined school.club today. Is about to start netball and love drama club been in quite a few school plays.
I'm very proud of my little toad (her nickname one of many) I wouldn't change a single thing about her x

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