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Which are the symptoms of Tuberous Sclerosis?

Symptoms of Tuberous Sclerosis reported by real patients, from the most common to the most limiting, plus a medically reviewed summary with sources.

Tuberous Sclerosis symptoms
7 answers
I think for my case it's the :

1) Subependymal giant cell astrocytomas
2) Seizures
3) Renal angiomyolipoma

Posted Sep 11, 2017 by AMusicGirl 700
There's no obvious symptons

Posted Apr 2, 2019 by Marocas 870
epilepsy, and i wouldn’t replace it with any symptoms if possible

Posted Jun 17, 2020 by Nick Fn Blum 2640
Translated from french Improve translation
The tuberous sclerosis Complex (TSC) is a genetic disease, mainly characterized by the development of benign tumors that can affect different organs. The skin, the brain and the kidneys are often affected, eyes, heart, teeth and lungs are less often.
There is a great diversity of manifestations of the disease with a time course very variable from one person to another and according to age, ranging from forms virtually inapparentes, limited to the skin, to more severe forms affecting the brain, the kidneys or the lungs.
It has been described for the first time in 1880 by D. M. Complex.

The manifestations of TSC is very diverse because many organs can be affected. There are large differences from one person to another and according to age. This diversity also exists within the same family when multiple people are infected with the STB. In fact, the manifestations can be late and moderate, and sometimes inapparentes for some people, while others may have manifestations
early and severe.
The enumeration of all the possible manifestations of the disease, may seem worrisome, but you should know that no one person has all of them, at the same time.

Skin disorders
Violations of the nervous system
With the Eye
With renal
With heart
With pulmonary

Other attacks
Other organs may be affected, such as the digestive tract, bones,... These attacks are rare for some, and often of no consequence.
The with dental deserve to be known. Swelling at the level of the gums (well dental) are possible, they may bleed and very fine depressions in the dental enamel can occur without increased risk of caries. Good dental hygiene is recommended.

Posted Apr 7, 2017 by Guillaume 1085
Translated from spanish Improve translation
It depends on each patient...to the most gives you seizures , other delay etc

Posted Sep 19, 2017 by claudia 2020
Translated from spanish Improve translation
Symptoms are benign growths in the skin, which is one of the indicators that are most notable, and least harmful, in the brain, in the kidneys, the heart or in the eye. The people who stay in the brain are the most limited a normal life because in most of the cases, and this is very important, no individual manifests the disease in the same way, I for example never had seizures belong to the six per cent , of my daughter of eleven months (for example if you have unexcused absences and is being medicated. That's why I said that the tumors at the neuronal level if it influences in the life of an ET

Posted Oct 3, 2017 by PAOLA 2500
Translated from spanish Improve translation
Symptoms more noticeable may be the white spots on the skin, of all sizes, from very small to more big, another symptom may be seizures, it is not always the seizures are aggregated (for whole body) can also be in a brazito, a piernita, half of the body.

The symptoms that can further limit the life serious the epilepsies, tumors in the brain that delay the normal intelligence of a child.

Posted Oct 11, 2017 by RolenMan 3120

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¡Hola! Soy la mamá de Roberto, mi bebe de 1 año.  Mi nene fué diagnósticado cuando tenía 6 meses de edad, después de que los espasmos infantiles comenzaron.  Hemos pasado por un sinfín de emociones al inicio de este viaje, he leído much...
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my daughter has tuberous sclerosis diagnosed at 8 months. Is now 7 . I'm a single dad taking care of her since she was 1. It's hard but would not know what I would do without her.

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