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Which advice would you give to someone who has just been diagnosed with Urticaria pigmentosa?

Advice for the newly diagnosed with Urticaria pigmentosa, written by people who have lived it. What they wish they had known on day one.

Urticaria pigmentosa advice
1 answer
I don't have much advice because there isn't much to offer. When I was seeing a Dr regularly I felt like a chronically ill patient and it took a toll on my psych. I opted to skip the annual exams, the multiple tests that were required yearly, multiple medications that weren't adding value to my life. I have not seen a Dr for this in 5+yrs and I'm fine. I treat with over the counter allergy meds and I get through life just fine. I pray endlessly for this to self resolve and for Drs and researchers to discover a treatment and cure.

Posted Mar 4, 2017 by Rx4 1050

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