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Can people with Von Hippel-Lindau Disease work? What kind of work can they perform?
Can you work with Von Hippel-Lindau Disease? Real patients share what jobs they do and how they adapted, plus practical guidance.
I believe it depends on the line of work you are in will allow you to be able to work. I personally did a lot of walking up and down stairs in collections that I have severe vertigo and nausea.
I think maybe 25% of persons with VHL work and work efficiently
I think maybe 25% of persons with VHL work and work efficiently
Posted May 16, 2017 by Terry 600
Yes they can work but have the limitations of sickness and surgeries. They need to have time off of work. So mainly working from home would be best. But if you are on a disability pension odsp. They take 50% of what you make. People with vhl should be careful of immune suppresent jobs and heavy lifting.
Posted May 16, 2017 by Kerry-Anne 1000
Yes and sometimes no. Depends on symptoms
Posted May 16, 2017 by Paul 1100
I believe working is possible if symptoms can be kept under control. If several surgeries are necessary, it gets more difficult to work physically. If a vast array of medications are necessary to keep symptoms under control, that can affect cognitive abilities and level of concentration. I think people with VHL can work in any field as long as they are able to physically and mentally manage it, along with their symptoms
Posted May 17, 2017 by Bobbi 1000
My husband worked as a pipefitter on submarines for almost forty years. He had brain tumors, retinal angiomas, and kidney tumors during that time. He had time off from work for medical care but otherwise worked his regular hours and then some.
Posted Jan 15, 2018 by Ronalee 150
