Story about Waldenstrom Macroglobulinemia .

Waldenstroms

Jun 23, 2026

By: Lynda


 

 

I was dxed with MGUS in 2008 by a nephrologist that I was referred to because of an e-GFR result. I progressed to Waldenstroms in 2014 after investigating my PN at MAYO. My PN is Anti-MAG. I was treated with Rituxan in January of 2015. I have had setbacks in my neuropathy,  which since resolved to my 2014 status. My IgM continues to drop,  currently  at 451mg .  Of interest  , I have a sister who has  MGUS. Also I found an old lab result from 1975 showing an elevated IGM,  which was considered "essentially normal" at that time.



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